THE ALEX MANFULL FUND 5K

June 3, 2023

8:00 am ET

3530 Water St NW, Washington, DC 20007

Education
Health Initiatives

Total raised:
$71,594

Donation goal:
$50,000

143% of our $50,000 goal!

This event has already passed.
CLICK HERE to make a donation to The Alex Manfull Fund.

About This Campaign

Please join us on June 3 to increase awareness and advance education for neuroimmune disorders. The race will be in honor of Alex Manfull who became a casualty of this horrendous condition in 2018.

Please consider supporting this important and underfunded cause. You can donate to the general fund or give to a team. Once you donate, you will be sent a separate link to register for the race.

With your $50 gift, at least 58 people can receive our comprehensive brochure that clearly describes PANDAS/PANS symptoms to facilitate diagnosis and treatment.

The team that ends up raising the most money will get bragging rights, a prize, and an announcement at the start of the race on stage! So, get out there, assemble a team, get donations, spread the word about our cause, and start training for June 3rd! We can’t wait to see you there!

Reach out to Allan ([email protected]) if you’d like to create a team.

Team Leaderboard

	Name	Progress	Total
1	“Inflamous” in CA (AB907) Rachel Spray, Shari Strulson, Karla Poblano, April Ronay, Lucy Beckett	100% of $15,000 100%	$15,000
2	PANSdemonium Daniela & Sonny Sarkar, Sosa-Gomez Family, Subir and Jaya Sarkar, Sushmita Sarkar, Sumana Sarkar, Lisa Balzereit, Jessica Carter, Jan Kerwin, Sosa-Papini Family, Dovarganes-Sosa Family	116% of $5,000 116%	$5,000
3	Nobody Walks Alone The Kaplan Center	113% of $5,000 113%	$5,000
4	Octapharma Huub Kreuwel	103% of $5,000 103%	$5,000
5	PANDAS Bulldogs Dr. Beth Latimer, Dr. Earl Harley	175% of $2,500 175%	$2,500
6	Keep Calm and Cure PANS Steve Falci, Christine Metzner, Ti Davis	151% of $2,500 151%	$2,500
6	Team Kate Marc and Carrie Giannettino	126% of $3,000 126%	$3,000
8	The Modern Trobadors Kathleen Brewster, Sarah Brewster, John Hasseldine, Rosjke Hasseldine, Virginia Holden, Peter Newbury, Paula Sonnino, Michael Sterling, Susan Manfull, Towny Manfull	102% of $2,500 102%	$2,500
9	Tessa's Trotters Paul Murphy and Terry Downing	101% of $2,500 101%	$2,500
10	Team Lulu Alissa Johnson, Curt Johnson, Nate Johnson, Amanda Peel Crowley, Blake Poggi, Sheila Gauch, Jonathan Cho, Mona Tarpley, Katherine Brown, Ramesh Allen, Cyrus Allen, Mercedes Roquefort, Bibiana Castenada	113% of $2,000 113%	$2,000
11	PANDAS FIGHTERS John Newman, Terri Newman, Dylan Newman, Chantal Newman Parsons, Jon Parsons, Juli Nardini	108% of $2,000 108%	$2,000
12	Knight Runner Joanne Knight	85% of $2,500 85%	$2,500
13	Lost in Pace Joni Conti, Quinton Alari	104% of $2,000 104%	$2,000
14	Western Loudoun Runner Moms Laura Hegedus	40% of $5,000 40%	$5,000
15	The Kid Crew Charlie Eaton	33% of $5,000 33%	$5,000
16	UNH Educators for PANS Awareness Dr. Ellen S. Cohn and Colleagues	133% of $1,000 133%	$1,000
17	Maryland Strong: PANS/PANDAS fighters Molly Mattoon, Laura Murdock	34% of $3,500 34%	$3,500
18	Princeton Class of 2013 Friends, Teammates, and Classmates of Alex	24% of $5,000 24%	$5,000
19	Worst Pace Scenario Marina Selenica, Jill Teitelbaum, Dan Butler, Daniela Alvarez, Charlie Veeck, Patch Hudson, Kamakshi Bhargava, Will Lowrie, Isabel Rowadr, Erik Nelson	117% of $1,000 117%	$1,000
20	SRC Runners Care “SRC” Shirlington Running Club (SRC) and The SRC Friends and Family	105% of $1,000 105%	$1,000
21	Fresno Friends of Alex Patti Thornton, Dennis Hayes, Dustin Blaylock, Bre Blaylock, Kim Hendrix, Susan Mendoza, Melissa Blaylock, Don Bedrosian, Todd Crowston	80% of $1,000 80%	$1,000
22	Undercover Runners Lisa Harper	50% of $1,000 50%	$1,000
23	PANS/PANDAS Gone Wild Ari Libbares (PANS Warrior) 10yo, Emi Libbares (PANS Warrior) 7yo, Jenna Libbares, Dave Libbares, Grady Libbares, George Libbares, Sharon Libbares, Jen Schlueter, Cam Shlueter, Nolan Schlueter, Landon Schlueter, Nicole Harper, Sammi Gilliam	45% of $1,000 45%	$1,000
24	The Slow Breakers Bill and Annika Stadler	43% of $1,000 43%	$1,000
25	Georgetown Medical Meg Pagonis, Brent Harris, Galam Khan	25% of $1,000 25%	$1,000
26	Hunter’s Hope Hunter Jackson, Rebecca & Bob Jackson, The Ormonde Family, The Cabral Family, The Farb Family, Maggie Jackson & friends, Emma McCrann, Luke Deschenes, Adrianna Moore, Addy Friedman	3% of $5,000 3%	$5,000
27	Salesforce Andrea Schiller	8% of $1,500 8%	$1,500

Event Information

When Alex Manfull died, at 26 years old, due to a neuroimmune disorder known as PANDAS, Susan and William Manfull established a Fund in their daughter’s name with the vision that no life ever again be cut short — or interrupted — by PANDAS/PANS. The Alex Manfull Fund is proud to have provided the funding to establish a repository at Georgetown University Medical Center for brains from donors diagnosed with neuroimmune disorders which, in January 2022, became the POND Brain Bank — PANDAS/PANS and Other Neuroimmune Disorders Brain Bank. We collaborate with other advocacy groups to increase awareness and advance education for physicians and mental health professionals about how to recognize and treat these disorders. If only one of Alex’s doctors had recognized PANDAS, Alex would be here today. Originally from New Hampshire, Alex died in Washington, DC in 2018. She loved to run along the Potomac so we know this race would be very meaningful to her.

More About The Cause(s)

The Alex Manfull Fund supports awareness, education, and research to further understand the incidence, etiology, and best treatments of post-infectious neuroimmune disorders (aka PANDAS, PANS, and Autoimmune Encephalitis) with an emphasis on their manifestation in Adolescents and Young Adults. Our ultimate goal is that no life ever again be cut short – or interrupted – by any neuroimmune disorder. TAMF is a national 501(c)(3) non-profit organization; all donations are tax-deductible to the full extent permitted by law.

Supporters

Moira DSouza
Jerry L. Jennings
Megan Wilson
Sharon Santamaria
Kathleen Kellerman
Alicia S Toby
Irma Ramirez- Vega
Mary Norcrosd
Diane Kelty
Matthew Milliron
Emily Talbert
Nicole Sanders
Kathleen Ann Brown
Alicia Keenan
Kathleen Adams
Ralph Paul
Timothy Melinson
Teri Hull
Laurel Cherwin
Lauren Schlesinger
Marvin Spivak
Sheilah Gauch
Kelly Goodman
Peggy Murray
ROBYN DINALLO
Victor Benassi
James Grosch
Andrew Weinstein
Stacey Brucia
Janet Davis
Patricia Thornton
jennifer Walsey
Rennie Leon
Brandii Toby-Leon
The Macintyre’s
Fahima Ahad
Kristen Ahrens
Jennifer Gingras
Liam Crotty
Sealan Crotty
Susan Forman
Jodi Brayton
Adriana Mena
Amy Smith
Bethany Huffman
Jennifer Rogers
Martyn Oliver
Cheryl Boyer
KATY CALICCHIA
Catherine Clay
Pam Tremont
Julie McClenathan
Lianna Kardeman
Kayla Caulfield
Tom Caballero
Heather Hopkins
Rebecca Warner
The Meighan Family Fund
Christine Metzner
Deborah Johnson
Maria Nardini
Juli Nardini
Rizza Valerio Elep
Elizabeth E Caldwell
Quinn Hardimon
Chris Hardimon
Lisa Balzereit
Maria McKenna
Jessi Irwin
Daniel Malloy
Russell Knoth
Marie Stapleton
Mary latimer
Deborah mize
Carrie Hoye
Jenna Libbares
Stacy Lorek
Bonnie Coalson
Joseph Cannon
Ann Peel
Michael Klein
Nicole Harper
Ari Libbares
Sammi Gilliam
Amanda Crowley
Lana Clough
Brent Harris
Ann & Bill Mohler
Paul Hilton
Richard Walters
Jay Amorosi
Shelaina Cain
Karen Lewis
Erin Wilson
Karen & Dave Couch
Sherry Slack
Laura BeVier
Paula Oakland
Maria Cifone-Rapp
Rachel Spray
Christina Kincaid
Peter Newbury
Karen Allman Ingulli
Karla Aceves
Steve Karpowitsch
Camille Hibbert
Terry B Smith
Kathleen Riordan
Sara Lawson
Daisie Hobson
David Scott Allen
Nadia Cavasilios
Jeremy Cordova
Carol Pierce
Ken Yeagef
ROSE MURSCH
John Whitbeck
Dave Walker
Barb Schuster
Kathleen Loan
Carmela Prcone
Melissa Berry
Arlene Clarkson
Beth/John Butler
Nita Douglas
Tracy Zimmerman
Allison Telintelo
Stephanie Cordell
Christopher Yahnke
Ruth Markowitz
Tracey Foulkes
Stacie Adams
Nicholas Rogers
Michael Giannettino
Ti Davis
Tina and Raymond Falci
Julie Maiers
Richard Giannettino
Molly Sheinberg
Patricia Leader
Michelle Seay
Patricia Kincaid
Andrew Giannettino
Michael Kellerman
Lisa Taylor-Soriero
Maitri Laxpati
David Nardini
Mitch Parker
snehal udavat
Amy Kumph
Ellen Patton
Barbara Benedict
Judy and Dan Trigiani
Carlton Einsel
Nancy Kinder
Ann Murphy
Denita Keys
Carl Gold
Abbey Ayanian
Kelly Hartnett
Mary Herman
Marc Giannettino
Carol Nigro
Ana Nardini
Tim O'Brien
Carolina Zambrano
Kate Lacouture
Kareena Rayner-Ramos
Ryan Crowley
Jarrod Phillips
Jonathan Cho
Dipika Chanana
Kathleen Coll
Kusha Tavakoli
Rebecca Shergill
Alain Peracca
Tim Bauman
Shelly Alvirez
Roshan Chagan
Barbara and Lew Weinstein
Bibiana Castaneda
Monika Cheney
Namrata Gaurie
Mona Tarpley
Shawn Wagner
Lisa DeVaughan
Juan Salazar
Sel Sajo
James Williams
Kristin Paul
Jeremy Seavey
Gary Fox
John Derrick
Jason Cohen
Mercedes Roquebert
Nate Johnson
Curt Johnson
Alissa Johnson
Balaji Govindaswami
Nora Brooks
Casey Lankenau
Andrew Karode
Akash Jain
Angelika Cullers
Laura Hamilton
Christina Oh
Penni Roll
Sandesh Hegde
Kimberly Zaccagnino
David Ribchester
Jyoti Panjwani
Mike and Nelly Arougheti
Kevin Gee
Pedro Biezonsky
Scott Lem
Laura Ligthart
Sean Taylor
Susan Manfull
Mike Leopardi
Melanie McKula
Melissa Ross
Alex Cochran
Ethan Kee
Cathy and Marc Scheineson
John Beran
Gage Rindt
Elisa and David Koff-Ginsborg
Lori Meyer
Sushmita Sarkar
Forma Family
Lori Turtiainen
Linda & Tom Kilian-Boyer
Michael Sterling
Hilary Grayver
Elizabeth Smith
Gabby Ormonde
yolanda jordan
Jane Lannon
Galam Khan
Emily Unger
Diane Leopardi
Katrina Karpowitsch
Maria Daane
Sadie Seibt
Chrissy Grammel
Tara Sreekrishnan
Kevin Delaney
Alexander Lin
Victor Perez
Brian Darrow
Jenny Fong
Michele Lew
Mike Potter
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Patricia Haddad
Lori Maramante
john doleman
Joan Conti
Vinay Sampson
Frank & Krista Cassaniti
Deborah Rudd
Paula Sonnino
Leann Bahi
Paul Miller
Eric Chamberlin
Ellie Forman
Marty Richman
Joanna Maltese
Edith Kopper
Anthony Garza
Carol Desermeau
Virginia Holden
Rosjke Hasseldine
Ryan Luhman
Jugal Shah
Susan LaMarr
Lauren M LaMarr
Vijayan Nair
Tanya Keller
Theresa Landau
Shari Strulson
Robyn Emde
Sarah Cooper
Valerie Lindgren
Carrie Catalano
Camvy Tsurui
Carl Trenz
Gabriela Schiller
Michael Whelan
Heidi Harnish
Maura Lynch
Susan VATER
MARIA LUPPINO
Vivek Kaisare
Ellen Cohn
Thomas J. McCabe
Helen Doty
David Sugarman
Jennifer Desjarlais
Justin Scango
ANDREA GRAZIO
EGLIS TELLEZ-CORRALES
Meg Pagonis
Jesse Kiss
Lisa Warne
Eric Smith
Isabel Marques
Angela Minutoli
Louis DiCriscio
Shawn Brelvi
Daniel Segal
Heidi Hanson
Kimberly Kaiser
Jerry Hull
Irene Pereda
Martin Lew
Elizabeth Bello de Sosa
Frank Winton
Nicole Meyer
Beth Latimer
John Foster
Claudio Sandoval
Dan Williams
Thomas Stockbridge
Wayne Froboese
Holly Lowe-Adamy
Anthony Acquaviva
Jackie Azbill
Angie Gentile
Anabella Dovarganes
Michael Bland
Katherine Quattrociocchi
Elizabeth Pulley
Nancy Barber
Mark Loreto
Kelsey Wasmer
Diane (nana) Richanne
Nichole Graham
Amanda Heller
David Said
Lauren Ahrens
Christian Zitelli
Lashawna Singh
Matt Stellato
Mary Ellen Johnson
John Donohue
Lucinda Lashley
Kevin Hedican
Darren & Sam Loken
Craig Heisinger
Carlee Alari
Quinton Alari
Deryck Boulanger
Leslie O'Sullivan
John Newman
Jan Kerwin
Stanley James Rogers
Marjorie Hunt
Huub Kreuwel
Alejandra Rodriguez
Elizabeth Feldman
Jessica Carter
Carlos Sosa Franco
Josefina Gomez de Sosa
Subir Sarkar
michael pilz
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Alex Taaffe
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Sally Williams
Jay Zach
Kaylee & Billy Kilgallin
Bill Stadler
Danielle Pellegrini
David Eaton
Nikhil Chervu
anita Dunham
Loreen Pelletier
Jacques Singer-emery
Hyunmoon Kim
James Cunningham
Siofra Robinson
Ashley Dennig
Emily Francis
Molly Mattoon
Erica Sugarman
Joanne Foster
Ant Pappenfus
Mark Cellucci
Paul Murphy
Terry Downing
Scarlett Brigham
Daniela Sarkar
Anne van der Voort
Susan Currier
Jacquelyn Currier
Abby Desmond
Bill Manfull
Claire Osinoff
Catherine Allaway
Allison Bussiere
Sue Johnson
Theresa Atkins
Susan Nofi
Michelle Brane
William Lowrie
Kamakshi Bhargava
Lisa S. Harper
Wit Sports
Krishnan Janardhanan
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Jill Teitelbaum
Vaidhy Murti
Allan Amico